The PSG is the largest non-profit clinical trial site network in North America conducting PD research. It is composed of over 155 sites with more than 375 credentialed investigators. It was formed in 1986, prompted by the recognition that clinical research in Parkinson disease (PD) required the participation of large numbers of research patients under the cooperative care of skilled and experienced research physicians, coordinators and allied professionals.
Since 1986, PSG has carried out cooperative therapeutic research beginning with the NIH-sponsored DATATOP (Deprenyl and Tocopherol Antioxidative Therapy of Parkinsonism) clinical trial. To date, the PSG has carried out more than 35 multi-center trials examining the symptomatic and neuroprotective effects of experimental interventions in Parkinson disease.
The PSG was officially designated a 501c3 non-profit organization in August of 2016. We have successfully partnered with numerous pharmaceutical companies and the National Institute of Health (NIH) in bringing new drugs for Parkinson disease to the market including pramipexole, entacapone, rotigotine and rasagiline.
The Visiting Mentorship Program was instrumental in connecting me with a mentor with expertise in my research area of interest. During the mentorship period, I was able to collaborate with my mentor through dedicated phone calls and an in-person meeting which eventually brought to fruition the publication of a peer-reviewed article on dementia risk factors for Parkinson’s disease.
Developing a relationship with Dr. Miyasaki through the PSG VMP was instrumental in helping me to build an effective palliative care program for persons with PD at Cleveland Clinic. While I do have excellent mentors here at CCF, we did not have anyone with Dr. Miyasaki's experience or knowledge in palliative care for movement disorders. I was fortunate enough to be able to visit her in Edmonton and observe her palliative clinic in person, and now our palliative clinic (we call it "CARE-PD") has been up and running since August 2020.
I had the privilege of receiving mentorship from Dr. Carlie Tanner which was supported by the PSG Mentored award in 2019. Having dedicated time to meet with Dr. Tanner, and the opportunity to bring Dr. Tanner together with the mentors I have locally at my institution, was an invaluable experience. Dr. Tanner provided me with advice and guidance on my research and career which I continue to benefit from to this day.
The PSG is thrilled to announce the featured speakers for our upcoming Coordinator Webinar: Denise & Bernard Coley. Denise is the founder of Enable Your Vision, a firm that provides supplier diversity consulting to drive economic vitality for diverse businesses, corporations and the communities in which they reside. Bernard is an executive with 50+ years of experience in the high tech industry. He is also a Principal in Enable Your Vision. Since being diagnosed with Parkinson’s disease in 2018, Denise has been driven to increase Parkinson’s awareness, education, and communications to under-engaged and remote global communities with the support of her husband, Bernard. Together, they have been a part of the Parkinson’s Foundation’s Research Advocates Group and members of the Parkinson’s Foundation California Advisory Board. They have also done work with other PD organizations, such as the World Parkinson Congress and the PD Avengers.
Currently, Mr. Coley is aiming his talents and time in support of those interested improving the lives of individuals and families impacted by Parkinson’s disease. He is a member of the Parkinson’s Foundation’s Research Advocates group and an advisory board member of the California chapter of the Parkinson’s Foundation. And finally, he is joining his wife, Denise in an outreach initiative to increase awareness of PD and PD resources in underserved communities of color. They co-chair a special interest group focused on bringing Black perspectives to PD research.
We hope that you will join us on Wednesday, March 1, 2023 at 1:00 PM EST for their presentation with live Q&A. Registration is required.
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