Parkinson’s Disease Common Data Elements

The National Institute of Neurological Disorders and Stroke (NINDS) recently assembled an external working group of nearly 70 international experts to develop the Parkinson’s disease Common Data Elements (CDEs).  Content standards, including data dictionaries and case report forms (CRFs), have been developed to enable clinical investigators to systematically collect, analyze, and share data across the research community. 


The PD CDEs are now publically available for use!  To access the materials, go to, click on Standards -> Parkinson’s disease -> Data Standards, then click on the domain name to view the CRF modules/guidelines.